A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey (Unknown)
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In:
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
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24
, 3-4
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272-280
;
2023
- Article (Journal) / Electronic Resource
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Title:A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey
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Contributors:Boyce, Danielle ( author ) / Robinson, Michael ( author ) / Cedarbaum, Jesse M. ( author ) / Shank, Lisa M. ( author ) / McDermott, Christopher J. ( author ) / van Eijk, Ruben P. A. ( author )
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Published in:Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration ; 24, 3-4 ; 272-280
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Publisher:
- New search for: Taylor & Francis
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Publication date:2023-04-03
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Size:9 pages
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ISSN:
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DOI:
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Type of media:Article (Journal)
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Type of material:Electronic Resource
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Language:Unknown
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Keywords:
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Source:
Table of contents – Volume 24, Issue 3-4
The tables of contents are generated automatically and are based on the data records of the individual contributions available in the index of the TIB portal. The display of the Tables of Contents may therefore be incomplete.
- 165
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The future of ALS diagnosis and staging: where do we go from here?Genge, Angela / Chio, Adriano et al. | 2023
- 175
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Remote digital assessment of amyotrophic lateral sclerosis functional rating scale – a multicenter observational studyMeyer, Thomas / Spittel, Susanne / Grehl, Torsten / Weyen, Ute / Steinbach, Robert / Kettemann, Dagmar / Petri, Susanne / Weydt, Patrick / Günther, René / Baum, Petra et al. | 2023
- 185
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Association between vascular risk factors and cognitive impairment in amyotrophic lateral sclerosis: a case-control studyYang, Tianmi / Wei, Qianqian / Li, Chunyu / Cao, Bei / Ou, Ruwei / Hou, Yanbing / Zhang, Lingyu / Chen, Yongping / Shang, Huifang et al. | 2023
- 195
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The incidence and prevalence of motor neurone disease in South AustraliaLuker, Jackson / Woodman, Richard / Schultz, David et al. | 2023
- 203
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Survival and epidemiology of amyotrophic lateral sclerosis (ALS) cases in the Chicago and Detroit metropolitan cohort: incident cases 2009–2011 and survival through 2018Punjani, Reshma / Larson, Theodore C. / Wagner, Laurie / Davis, Bryn / Horton, D. Kevin / Kaye, Wendy et al. | 2023
- 212
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Impact of occupational categories on the incidence of amyotrophic lateral sclerosis in Sardinia Island, ItalyPierri, Vincenzo / Borghero, Giuseppe / Pili, Francesca / Ercoli, Tommaso / Gigante, Angelo Fabio / Lecca, Luigi Isaia / Vasta, Rosario / Campagna, Marcello / Chiò, Adriano / Defazio, Giovanni et al. | 2023
- 219
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Occupational history associates with ALS survival and onset segmentGoutman, Stephen A. / Boss, Jonathan / Godwin, Christopher / Mukherjee, Bhramar / Feldman, Eva L. / Batterman, Stuart A. et al. | 2023
- 230
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A revision to the United States national ALS registry’s algorithm to improve Case-AscertainmentMehta, Paul / Raymond, Jaime / Han, Moon / Punjani, Reshma / Larson, Theodore / Berry, James D. / Brooks, Benjamin Rix / Oskarsson, Björn / Goutman, Stephen a. / Horton, Kevin et al. | 2023
- 237
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Dying from ALS in Sweden: clinical status, setting, and symptomsSennfält, Stefan / Kläppe, Ulf / Thams, Sebastian / Samuelsson, Kristin / Press, Rayomand / Fang, Fang / Ingre, Caroline et al. | 2023
- 246
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Amyotrophic lateral sclerosis (ALS) health charities are central to ALS care: perspectives of Canadians affected by ALSAhmad, Mira / Genuis, Shelagh K. / Luth, Westerly / Bubela, Tania / Johnston, Wendy S. et al. | 2023
- 256
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The involvement of palliative care with neurology – a comparison of UK, Switzerland and ItalyOliver, David / Baker, Idris / Borasio, Gian Domenico / Cras, Patrick / Faull, Christina / Hepgul, Nilay / Lorenzl, Stefan / Stockdale, Claire / de Visser, Marianne / Vanopdenbosch, Ludo et al. | 2023
- 263
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Combination of ciprofloxacin/celecoxib as a novel therapeutic strategy for ALSSalomon-Zimri, Shiran / Pushett, Avital / Russek-Blum, Niva / Van Eijk, Ruben P. A. / Birman, Nurit / Abramovich, Beatrice / Eitan, Erez / Elgrart, Katya / Beaulieu, Danielle / Ennist, David L. et al. | 2023
- 272
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A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional surveyBoyce, Danielle / Robinson, Michael / Cedarbaum, Jesse M. / Shank, Lisa M. / McDermott, Christopher J. / van Eijk, Ruben P. A. et al. | 2023
- 281
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Incorporating patient preferences and burden-of-disease in evaluating ALS drug candidate AMX0035: a Bayesian decision analysis perspectiveXu, Qingyang / Cho, Joonhyuk / Ben Chaouch, Zied / Lo, Andrew W. et al. | 2023
- 289
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Impact of mode of training and recertification on ALSFRS-R rater performanceHamilton, Jenny / Mohan, Praveena / Kittle, Gale / Shefner, Jeremy M. et al. | 2023
- 295
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Yield of EEG features as markers of disease severity in amyotrophic lateral sclerosis: a pilot studyNotturno, Francesca / Croce, Pierpaolo / Ornello, Raffaele / Sacco, Simona / Zappasodi, Filippo et al. | 2023
- 304
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MiToS and King’s staging as clinical outcome measures in ALS: a retrospective analysis of the FORTITUDE-ALS trialGebrehiwet, Paulos / Meng, Lisa / Rudnicki, Stacy A. / Sarocco, Phil / Wei, Jenny / Wolff, Andrew A. / Chiò, Adriano / Andrews, Jinsy A. / Genge, Angela / Jackson, Carlayne E. et al. | 2023
- 311
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Clinically meaningful change: evaluation of the Rasch-built Overall Amyotrophic Lateral Sclerosis Disability Scale (ROADS) and the ALSFRS-RFournier, Christina N. / James, Virginia / Glass, Jonathan D. et al. | 2023
- 317
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The quality of life and depression in primary caregivers of patients with amyotrophic lateral sclerosis is affected by patient-related and culture-specific conditionsMaksymowicz-Śliwińska, Anna / Lulé, Dorothée / NieporĘcki, Krzysztof / Ciećwierska, Katarzyna / Ludolph, Albert C. / Kuźma-Kozakiewicz, Magdalena et al. | 2023
- 327
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Stigma experienced by ALS/PMA patients and their caregivers: a mixed-methods studySommers-Spijkerman, Marion / Kavanaugh, Melinda S. / Kruitwagen-Van Reenen, Esther / Zwarts-Engelbert, Aimée / Visser-Meily, Johanna M. A. / Beelen, Anita et al. | 2023
- 339
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Reliable change indices for the Italian Edinburgh Cognitive and Behavioral ALS Screen (ECAS)Aiello, Edoardo Nicolò / Solca, Federica / Torre, Silvia / Carelli, Laura / Monti, Alessia / Ferrucci, Roberta / Verde, Federico / Ticozzi, Nicola / Silani, Vincenzo / Poletti, Barbara et al. | 2023
- 343
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Exposure to electromagnetic fields does not modify neither the age of onset nor the disease progression in ALS patientsVasta, Rosario / Callegaro, Stefano / Grassano, Maurizio / Canosa, Antonio / Cabras, Sara / Di Pede, Francesca / Matteoni, Enrico / De Mattei, Filippo / Casale, Federico / Salamone, Paolina et al. | 2023
- 347
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Expanding the spectrum of KIF5A mutations—case report of a large kindred with familial ALS and overlapping syndromeDulski, JarosŁaw / Strongosky, Audrey J. / Al-Shaikh, Rana Hanna / Wszolek, Zbigniew K. et al. | 2023
- 351
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ALSUntangled #65: glucocorticoid corticosteroidsGoslinga, Jill Ann / Terrelonge, MarkJr. / Bedlack, Richard / Barkhaus, Paul / Barnes, Benjamin / Bertorini, Tulio / Bromberg, Mark / Carter, Gregory / Chen, Amy / Crayle, Jesse et al. | 2023