Impact and experiences of vestibular disorders and psychological distress: Qualitative findings from patients, family members and healthcare professionals (English)
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In:
Health Expectations
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27
, 1
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2024
- Article (Journal) / Electronic Resource
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Title:Impact and experiences of vestibular disorders and psychological distress: Qualitative findings from patients, family members and healthcare professionals
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Contributors:Smith, Laura J. ( author ) / Pyke, Wesley ( author ) / Fowler, Rosanna ( author ) / Matthes, Britta ( author ) / de Goederen, Emma ( author ) / Surenthiran, Shanmuga ( author )
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Published in:Health Expectations ; 27, 1
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Publisher:
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Publication date:2024-02-01
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Size:13 pages
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ISSN:
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DOI:
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Type of media:Article (Journal)
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Type of material:Electronic Resource
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Language:English
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Keywords:
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Source:
Table of contents – Volume 27, Issue 1
The tables of contents are generated automatically and are based on the data records of the individual contributions available in the index of the TIB portal. The display of the Tables of Contents may therefore be incomplete.
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Relational practices for meaningful inclusion in health research: Results of a deliberative dialogue studyPlamondon, Katrina / Banner, Davina / Cary, Miranda A. / Faulkner, Melissa / Gainforth, Heather / Ghag, Kiranpreet / Hoens, Alison / Huisken, Anne / Kandola, Damanpreet K. / Khan, Shaheer et al. | 2024
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Employing cofacilitation to balance power and priorities during health service codesignHarrison, Reema / Newman, Bronwyn / Chauhan, Ashfaq / Sarwar, Mashreka et al. | 2024
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Reducing long‐term use of benzodiazepine receptor agonists: In‐depth interview study with primary care stakeholdersCoteur, Kristien / Peters, Sanne / Jansen, Pieter / Schoenmakers, Birgitte / Van Nuland, Marc et al. | 2024
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We are not even allowed to call them patients anymore: Conceptions about person‐centred careMäättä, Sylvia / Björkman, Ida et al. | 2024
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The experiences of people with liver disease of palliative and end‐of‐life care in the United Kingdom—A systematic literature review and metasynthesisBeresford, Cathy J. / Gelling, Leslie / Baron, Sue / Thompson, Linda et al. | 2024
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Diversity in patient and public involvement in healthcare research and education—Realising the potentialHatch, Sarah / Fitzgibbon, Jim / Tonks, Amanda Jayne / Forty, Liz et al. | 2024
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Adolescents, parents, and providers' experiences of triadic encounters in paediatric diabetes clinics: A qualitative studyCoyne, Imelda / Pembroke, Sinead / Sleath, Betsy / Brenner, Maria / Roche, Edna F. / Hilliard, Carol / Cody, Declan et al. | 2024
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Identifying locally actionable strategies to increase participant acceptability and feasibility to participate in Phase I cancer clinical trialsStaras, Stephanie A. S. / Wollney, Easton N. / Emerson, Lisa E. / Silver, Natalie / Dziegielewski, Peter T. / Hansen, Marta D. / Sanchez, Gabriela / D'Ingeo, Dalila / Johnson‐Mallard, Versie / Renne, Rolf et al. | 2024
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Patient preferences for heart valve disease interventionFifer, Simon / Keen, Brittany / Guilbert‐Wright, Polo / Yamabe, Kaoru / Murdoch, Dale J. et al. | 2024
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Implementing peer support work in mental health care in Germany: The methodological framework of the collaborative, participatory, mixed‐methods study (ImpPeer‐Psy5)von Peter, Sebastian / Kraemer, Ute Maria / Cubellis, Lauren / Fehler, Georgia / Ruiz‐Pérez, Guillermo / Schmidt, Daniela / Ziegenhagen, Jenny / Kuesel, Madeleine / Ackers, Susanne / Mahlke, Candelaria et al. | 2024
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Person‐centred integrated care for people living with Parkinson's, Huntington's and Multiple Sclerosis: A systematic reviewBartolomeu Pires, Sandra / Kunkel, Dorit / Kipps, Christopher / Goodwin, Nick / Portillo, Mari C. et al. | 2024
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‘It's a job to be done’. Managing polypharmacy at home: A qualitative interview study exploring the experiences of older people living with frailtyPrevidoli, Giorgia / Alldred, David P. / Silcock, Jonathan / Tyndale‐Biscoe, Savi / Okeowo, Daniel / Cheong, V‐Lin / Fylan, Beth et al. | 2024
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Development of person‐centred quality indicators for aged care assessment services in Australia: A mixed methods studySmith, Sandra / Travers, Catherine / Roberts, Natasha / Martin‐Khan, Melinda et al. | 2024
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My Wellbeing Journal: Development of a communication and goal‐setting tool to improve care for older adults with chronic conditions and multimorbidityLawless, Michael T. / Archibald, Mandy M. / Ambagtsheer, Rachel C. / Pinero de Plaza, Maria Alejandra / Kitson, Alison L. et al. | 2024
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Moving towards social inclusion: Engaging rural voices in priority setting for healthTugendhaft, Aviva / Christofides, Nicola / Stacey, Nicholas / Kahn, Kathleen / Erzse, Agnes / Danis, Marion / Gold, Marthe / Hofman, Karen et al. | 2024
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Preference‐based patient participation in intermediate care: Translation, validation and piloting of the 4Ps in NorwayKvæl, Linda A. H. / Bergland, Astrid / Eldh, Ann C. et al. | 2024
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‘We have no services for you… so you have to make the best out of it’: A qualitative study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients’ dissatisfaction with healthcare servicesMelby, Line / Nair, Roshan das et al. | 2024
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The value of using patient‐reported outcomes for health screening during long‐term follow‐up after paediatric stem cell transplantation for nonmalignant diseasesBense, Joëll E. / Guilonard, Nicole / Zwaginga, Femke / Stiggelbout, Anne M. / Louwerens, Marloes / Mekelenkamp, Hilda / Lankester, Arjan C. / Pieterse, Arwen H. / de Pagter, Anne P. J. et al. | 2024
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Person‐centred caregiver singing for people living with dementia in South Africa: A mixed methods evaluation of acceptability, feasibility, and professional caregivers' experiencesStuart‐Röhm, Karyn / Clark, Imogen N. / Baker, Felicity A. et al. | 2024
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Public involvement in chronic respiratory diseases research: A qualitative study of patients', carers' and citizens' perspectivesAreia, Margarida / Dias, Liliana P. / Matos, Paula / Figueiredo, Daniela / Neves, Ana L. / da Costa, Emília D. / Loureiro, Cláudia C. / Boechat, José L. / Reis, António B. / Simões, Pedro et al. | 2024
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Pregnant women with diabetes and their clinician's experience of participating in a pilot randomised controlled trial of corticosteroid administration in late pregnancy: A qualitative studySweet, Linda / Vasilevski, Vidanka / Lynch, Lee‐Anne / Said, Joanne M. et al. | 2024
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The lived experiences of oropharyngeal dysphagia in adults living with fibromyalgiaGilheaney, Órla / Hussey, Joeann / McTiernan, Kathleen et al. | 2024
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‘Safety is about partnership’: Safety through the lens of patients and caregiversKuluski, Kerry / Asselbergs, Maaike / Baker, Ross / Burns, Katharina (Kathy) Kovacs / Bruno, Frances / Saragosa, Marianne / MacLaurin, Anne / Flintoft, Virginia / Jeffs, Lianne et al. | 2024
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Sources of knowledge empowerment amongst pregnant women with TB disease: A qualitative study in South AfricaAdrinah, Mulondo Seani / Base, Khoza Lunic / Tsakani, Lebese Rachel et al. | 2024
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Perceived weight stigma in healthcare settings among adults living with obesity: A cross‐sectional investigation of the relationship with patient characteristics and person‐centred careCrompvoets, Paige I. / Nieboer, Anna P. / van Rossum, Elisabeth F. C. / Cramm, Jane M. et al. | 2024
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Perspectives of researchers and clinicians on patient and public involvement (PPI) in preclinical spinal cord research: An interview studyCarroll, Pádraig / Smith, Éimear / Dervan, Adrian / McCarthy, Ciarán / Beirne, Cliff / Quinlan, John / Harte, Geoff / O'Flynn, Dónal / O'Brien, Fergal J. / Moriarty, Frank et al. | 2024
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Carers' experiences and perspectives of the use of anticholinergic medications in people living with dementia: Analysis of an online discussion forumShawaqfeh, Bara'a / Hughes, Carmel M. / McGuinness, Bernadette / Barry, Heather E. et al. | 2024
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Patient partner perspectives on compensation: Insights from the Canadian Patient Partner SurveyDhamanaskar, Roma / Tripp, Laura / Vanstone, Meredith / Canfield, Carolyn / Levasseur, Mary Anne / Abelson, Julia et al. | 2024
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Content validity testing of the INTERMED Self‐Assessment in a sample of adults with rheumatoid arthritis and rheumatology healthcare providersDhiman, Kiran / Hall, Marc / Crump, Trafford / Hoens, Alison M. / Lacaille, Diane / Rankin, James A. / Then, Karen L. / Hazlewood, Glen / Barnabe, Cheryl / Katz, Steven et al. | 2024
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‘I am proud of how I handled it’. Exploring the impact of the COVID‐19 pandemic and related restrictions on well‐being of adults with severe mental illness using qualitative methodsvan Rijn, L. / Metz, M. J. / van der Velden, P. R. / Mathijsen, P. / Swildens, W. E. / Schellekens, A. F. A. / Cahn, W. / Milota, M. M. / Zinkstok, J. R. et al. | 2024
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Cover ImageBosak, Julie / Drainoni, Mari‐Lynn / Bryer, Cheri / Goodman, Daisy / Messersmith, Lisa / Declercq, Eugene et al. | 2024
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Knowledge‐based representation: Patient engagement in drug developmentEgher, Claudia / Zvonareva, Olga et al. | 2024
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Struggling with capital: Recovery after severe traumatic brain injury among working‐age individuals in DenmarkHindhede, Anette L. et al. | 2024
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Views and preferences of food‐insecure pregnant women regarding food insecurity screening and support within routine antenatal careZinga, Julia / van der Pligt, Paige / McKay, Fiona H. et al. | 2024
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How and why do doctors communicate diagnostic uncertainty: An experimental vignette studyCox, Caitríona / Hatfield, Thea / Fritz, Zoë et al. | 2024
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Participant and caregiver perspectives on health feedback from a healthy lifestyle checkLee, Miranda D. / Wild, Cervantée E. K. / Taiapa, Ken J. / Rawiri, Ngauru T. / Egli, Victoria / Maessen, Sarah E. / Anderson, Yvonne C. et al. | 2024
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The acceptability of, and informational needs related to, self‐collection cervical screening among women of Indian descent living in Victoria, Australia: A qualitative studyMachado Colling, Ana / Creagh, Nicola S. / Gogia, Neha / Wyatt, Kerryann / Zammit, Claire / Brotherton, Julia M. L. / Nightingale, Claire E. et al. | 2024
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Creating safer cancer care with ethnic minority patients: A qualitative analysis of the experiences of cancer service staffChauhan, Ashfaq / Newman, Bronwyn / Manias, Elizabeth / Joseph, Kathryn / Leone, Desiree / Walpola, Ramesh L. / Seale, Holly / Smith, Allen Ben / Harrison, Reema et al. | 2024
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Scope and inclination of voluntary service for urban community‐living older adults provided by volunteers with nursing background: A qualitative studyHuang, Lei / Wu, Hongyan / Zhang, Fengjian / Peng, Xiao / Guo, Lin / Liao, Lulu / Hu, Mengyun / Wang, Shuang / Guan, Chunyan / Liu, Yilan et al. | 2024
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Patient and public involvement and engagement with underserved communities in dementia research: Reporting on a partnership to co‐design a website for postdiagnostic dementia supportDi Lorito, Claudio / Griffiths, Sarah / Poole, Marie / Kaviraj, Chandrika / Robertson, Martin / Cutler, Neil / Wilcock, Jane et al. | 2024
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‘I wasn't made to feel like a nut case after all’: A qualitative story completion study exploring healthcare recipient and carer perceptions of good professional caregiving relationshipsFeo, Rebecca / Young, Jessica A. / Urry, Kristi / Lawless, Michael / Hunter, Sarah C. / Kitson, Alison / Conroy, Tiffany et al. | 2024
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Older adults' needs and preferences for a nutrition education digital health solution: A participatory design studyTurner, Ashlee / Flood, Victoria M. / LaMonica, Haley M. et al. | 2024
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What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysisOng, Natalie / Lucien, Abbie / Long, Janet / Weise, Janelle / Burgess, Annette / Walton, Merrilyn et al. | 2024
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Parenting through place‐of‐care disruptions: A qualitative study of parents' experiences of neonatal careCupit, Caroline / Paton, Alexis / Boyle, Elaine / Pillay, Thillagavathie / Anderson, Josie / Armstrong, Natalie / the OPTI‐PREM team et al. | 2024
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Public participation in healthcare students' education: An umbrella reviewNowell, Lorelli / Keogh, Bryn / Laios, Eleftheria / Mckendrick‐Calder, Lisa / Lucas Molitor, Whitney / Wilbur, Kerry et al. | 2024
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A qualitative evaluation of a co‐design process involving young people at risk of suicideKehoe, Michelle / Whitehead, Rick / de Boer, Kathleen / Meyer, Denny / Hopkins, Liza / Nedeljkovic, Maja et al. | 2024
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Coproduction of a resource sharing public views of health inequalities: An example of inclusive public and patient involvement and engagementParbery‐Clark, Charlotte / Nicholls, Rosemary / McSweeney, Lorraine / Sowden, Sarah / Lally, Joanne et al. | 2024
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The PRO‐HOME Project. A multicomponent intervention for the protected discharge from the hospital of multimorbid and polytreated older individuals by using innovative technologies: A pilot studyPilotto, Alberto / Volta, Erica / Barbagelata, Marina / Argusti, Alessandra / Camurri, Antonio / Casiddu, Niccolò / Berutti‐Bergotto, Carlo / Custodero, Carlo / Cella, Alberto et al. | 2024
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‘Eating is like experiencing a gamble’: A qualitative study exploring the dietary decision‐making process in adults with inflammatory bowel diseaseTing‐Ting, Yin / Wen‐Jing, Tu / Yi‐Ting, Li / Wen‐Jing, Xu / Gui‐Hua, Xu et al. | 2024
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Perspectives of women living with type 1 diabetes regarding preconception and antenatal care: A qualitative evidence synthesisToledo‐Chavarri, Ana / Delgado, Janet / Rodríguez‐Martín, Beatriz et al. | 2024
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Associations between GoSmart Channel, health literacy and health behaviours in adolescents: A population‐based studyHuang, Junjie / Chan, Sze Chai / Keung, Vera M. W. / Cheung, Calvin K. M. / Lo, Amelia S. C. / Lau, Vincent T. C. / Mui, Lancelot W. H. / Lee, Albert / Wong, Martin C. S. et al. | 2024
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Translation, cultural adaptation and validation of a patient‐reported experience measure for childrenNordlind, Anna / Anderzén‐Carlsson, Agneta / Sundqvist, Ann‐Sofie / Ängeby, Karin / Wray, Jo / Oldham, Geralyn / Almblad, Ann‐Charlotte et al. | 2024
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Ameliorating epistemic injustice in practice: Communication strategies in a research project with refugee youth coresearchersInge, Elin / Pérez‐Aronsson, Anna / Ibrahim, Kalid / Aljeshy, Reem / Sarkadi, Anna / Warner, Georgina et al. | 2024
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Reflections from the ‘Hold the door open’ project: Inviting older adults across the UK to shape dissemination of health research findingsSilvonen, Taru / McGrath, Carmel / Murray, Anne / Christensen, Hannah et al. | 2024
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Public values to guide childhood vaccination mandates: A report on four Australian community juriesDegeling, Chris / Leask, Julie / Attwell, Katie / Wood, Nicholas / Braunack‐Mayer, Annette / Wiley, Kerrie / Ward, Paul / Carter, Stacy M. et al. | 2024
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Compound impact of cognitive and physical decline: A qualitative interview study of people with Parkinson's and cognitive impairment, caregivers and professionalsPigott, Jennifer S. / Davies, Nathan / Chesterman, Elizabeth / Read, Joy / Nimmons, Danielle / Walters, Kate / Armstrong, Megan / Schrag, Anette et al. | 2024
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Item development for a patient‐reported measure of compassionate healthcare in actionChatburn, Eleanor / Marks, Elizabeth / Maddox, Lucy et al. | 2024
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The psychosocial beliefs, experiences and expectations of children living with obesityNewson, Lisa / Sides, Nicola / Rashidi, Amineh et al. | 2024
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Experiences and views of people who frequently call emergency ambulance services: A qualitative study of UK service usersEvans, Bridie A. / Khanom, Ashra / Edwards, Adrian / Edwards, Bethan / Farr, Angela / Foster, Theresa / Fothergill, Rachael / Gripper, Penny / Gunson, Imogen / Porter, Alison et al. | 2024
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Evaluation of aspiration risk by relatives of inpatients in the neurology service: A metaphor analysisKaş, Canan / Çakır, Filiz Ö. / Kocatürk, İdris et al. | 2024
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Amplifying the voices of Black racial minorities in mental health research through public involvement and engagement: The importance of advisory rolesOnwumere, Juliana / Gentle, Anthony / Obanubi, Rachel / Davis, Annette / Karuga, Moffat / Ali, Rubbia / Cardi, Valentina / BeFine Study Team et al. | 2024
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Promoting ‘testicular awareness’: Co‐design of an inclusive campaign using the World Café MethodologySaab, Mohamad M. / Shetty, Varsha N. / McCarthy, Megan / Davoren, Martin P. / Flynn, Angela / Kirby, Ann / Robertson, Steve / Shorter, Gillian W. / Murphy, David / Rovito, Michael J. et al. | 2024
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Experiences of health service access: A qualitative interview study of people living with Parkinson's disease in IrelandO' Shea, Emma / Rukundo, Aphie / Foley, Geraldine / Wilkinson, Tony / Timmons, Suzanne et al. | 2024
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Codesigning implementation strategies to improve evidence‐based stroke rehabilitation: A feasibility studyLynch, Elizabeth A. / Bulto, Lemma N. / West, Maria / Cadilhac, Dominique A. / Cooper, Fawn / Harvey, Gillian et al. | 2024
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Impact and experiences of vestibular disorders and psychological distress: Qualitative findings from patients, family members and healthcare professionalsSmith, Laura J. / Pyke, Wesley / Fowler, Rosanna / Matthes, Britta / de Goederen, Emma / Surenthiran, Shanmuga et al. | 2024
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Evaluating patient participation in value‐based healthcare: Current state and lessons learnedWesterink, Henrike J. / Garvelink, Mirjam M. / van Uden‐Kraan, Cornelia F. / Zouitni, Ouisam / Bart, Hans A. J. / van der Wees, Philip J. / van der Nat, Paul B. / the Santeon Patient Participation Study Group et al. | 2024
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A qualitative study assessing allied health provider perceptions of telepractice functionality in therapy delivery for people with disabilityBenz, Cloe / Dantas, Jaya / Welsh, Mai / Norman, Richard / Robinson, Suzanne / Hendrie, Delia et al. | 2024
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‘It's quite a balancing act’: A qualitative study of parents' experiences and information needs related to the COVID‐19 pandemicHartling, Lisa / Elliott, Sarah A. / Wright, Kelsey S. / Knisley, Lisa / Scott, Shannon D. et al. | 2024
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The patient representation struggle during the COVID‐19 pandemic: Missed opportunities for resilient healthcare systemsvan de Bovenkamp, Hester / de Graaff, Bert / Kalthoff, Karin / Bal, Roland et al. | 2024
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Co‐designing a theory‐informed, multicomponent intervention to increase vaccine uptake with Congolese migrants: A qualitative, community‐based participatory research study (LISOLO MALAMU)Crawshaw, Alison F. / Kitoko, Lusau M. / Nkembi, Sarah L. / Lutumba, Laura M. / Hickey, Caroline / Deal, Anna / Carter, Jessica / Knights, Felicity / Vandrevala, Tushna / Forster, Alice S. et al. | 2024
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‘Including us, talking to us and creating a safe environment’—Youth patient and public involvement and the Walking In ScHools (WISH) Study: Lessons learnedGallagher, Alison M. / O'Kane, Sarah Maria / Doherty, Leanne C. / Faulkner, Maria / McDermott, Gary / Jago, Russell / Lahart, Ian M. / Murphy, Marie H. / Carlin, Angela et al. | 2024
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What should inpatient psychological therapies be for? Qualitative views of service users on outcomesMorgan, Ceri / Clarkson, Lucy / Hiscocks, Rebecca / Hopkins, India / Berry, Katherine / Tyler, Natasha / Wood, Lisa / Jacobsen, Pamela et al. | 2024
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Acceptability and barriers of a GP–physiotherapist partnership in the diagnosis and management of COPD in primary care: A qualitative studyPagano, Lisa / McKeough, Zoe / Wootton, Sally L. / Chan, Andrew S. L. / Mahadev, Sriram / Zwar, Nicholas / Pallavicini, Deborah / Dennis, Sarah et al. | 2024
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The lived experience of weight loss maintenance in young peopleSides, Nicola / Pringle, Andy / Newson, Lisa et al. | 2024
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Exploring the life experiences of school‐aged children afflicted by tethered spinal cord syndrome: An interpretative qualitative studyLin, Nan / Ren, Mingxian / Xiang, Yujun / Li, Jiahuan / Wang, Dan / Xu, Hongzhen et al. | 2024
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What guidance exists to support patient partner compensation practices? A scoping review of available policies and guidelinesFox, Grace / Fergusson, Dean A. / Sadeknury, Ahmed / Nicholls, Stuart G. / Smith, Maureen / Stacey, Dawn / Lalu, Manoj M. et al. | 2024
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Depression care integration in tuberculosis services: A feasibility assessment in PakistanAfaq, Saima / Ayub, Aliya / Faisal, Mehreen Riaz / Nisar, Zara / Zala / Rehman, Ateeq ur / Ahmed, Afzaal / Todowede, Olamide / Siddiqi, Najma et al. | 2024
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‘A good decision is the one that feels right for me’: Codesign with patients to inform theoretical underpinning of a decision aid websiteKohut, Kelly / Morton, Kate / Hurley, Karen / Turner, Lesley / Dale, Caroline / Eastbrook, Susan / Gold, Rochelle / Henwood, Kate / Patton, Sonia / Punjabi, Reshma et al. | 2024
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Public perspectives on inequality and mental health: A peer research studyPinfold, Vanessa / Thompson, Rose / Lewington, Alex / Samuel, Gillian / Jayacodi, Sandra / Jones, Oliver / Vadgama, Ami / Crawford, Achille / Fischer, Laura E. / Dykxhoorn, Jennifer et al. | 2024
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Family‐centred care interventions for children with chronic conditions: A scoping reviewChow, Andrea J. / Saad, Ammar / Al‐Baldawi, Zobaida / Iverson, Ryan / Skidmore, Becky / Jordan, Isabel / Pallone, Nicole / Smith, Maureen / Chakraborty, Pranesh / Brehaut, Jamie et al. | 2024
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Co‐designing a community lifestyle intervention program to reduce postpartum weight retentionMakama, Maureen / Skouteris, Helen / Moran, Lisa J. / Hill, Briony / Redman, Leanne M. / Lim, Siew et al. | 2024
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Operationalizing the principles of patient engagement through a Patient Advisory Council: Lessons and recommendationsNielssen, Ingrid / Santana, Maria / Pokharel, Surakshya / Strain, Kimberly / Kiryanova, Veronika / Zelinsky, Sandra / Khawaja, Zoha / Khanna, Prachi / Rychtera, Anni / Ambasta, Anshula et al. | 2024
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Co‐designing a telepractice journey map with disability customers and clinicians: Partnering with users to understand challenges from their perspectiveBenz, Cloe / Scott‐Jeffs, William / Revitt, Jerah / Brabon, Chloe / Fermanis, Chloe / Hawkes, Melanie / Keane, Catherine / Dyke, Robert / Cooper, Samantha / Locantro, Matthew et al. | 2024
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Citizen science to improve patient and public involvement in GUideline Implementation in oral health and DEntistry (the GUIDE platform)Hosie, Annabel / Firdaus, Maria / Clarkson, Jan / Gupta, Ekta / Laidlaw, Lynn / Lamont, Thomas / Mooney, Margaret / Nevin, Gillian / Ramsay, Craig / Rutherford, Samantha et al. | 2024
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Development of a decision‐support framework to support professionals and promote comfort among older hospital inpatients living with dementiaDavies, Nathan / West, Emily / Smith, Ellen M. / Vickerstaff, Victoria / Manthorpe, Jill / Shah, Malvi / Rait, Greta / Wilcock, Jane / Ward, Jane / Sampson, Elizabeth L. et al. | 2024
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Public and patient involvement in the development of an internet‐based guide for persistent somatic symptoms (GUIDE.PSS): A qualitative study on the needs of those affectedFränkl, Eirin / Hasenbank, Nele / Dumröse, Karin / Löwe, Bernd / Kohlmann, Sebastian et al. | 2024
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‘Keeping it real’: A qualitative exploration of preferences of people with lived experience for participation and active involvement in mental health research in AustraliaDray, Julia / Palmer, Victoria J. / Banfield, Michelle et al. | 2024
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The meaning of the recovery process and its stages for people attending a mental health day hospital: A qualitative studyVentosa‐Ruiz, Ana / Moreno‐Poyato, Antonio R. / Lluch‐Canut, Teresa / Feria‐Raposo, Isabel / Puig‐Llobet, Montserrat et al. | 2024
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Co‐producing a board game to learn and engage about dementia inequalities: First impacts on knowledge in the general populationGiebel, Clarissa / Hanna, Kerry / Tetlow, Hilary / Gabbay, Mark / Cannon, Jacqui et al. | 2024
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Exploring the experiences and preferences of South Asian patients' of primary care in England since COVID‐19Small, Nicola / Masood, Yumna / Stevenson, Fiona / Brown, Benjamin C. / Sanders, Caroline / McMillan, Brian / Atherton, Helen / Mazumdar, Tandrima / Ara, Nigat / Haqqani, Humera et al. | 2024
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Community views on the secondary use of general practice data: Findings from a mixed‐methods studyBraunack‐Mayer, Annette J. / Adams, Carolyn / Nettel‐Aguirre, Alberto / Fabrianesi, Belinda / Carolan, Lucy / Beilby, Justin / Flack, Felicity et al. | 2024
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Are codesigned programmes more difficult to implement? A qualitative study of staff perceptions on the implementation of a new youth mental health programmeKehoe, Michelle / Whitehead, Rick / de Boer, Kathleen / Meyer, Denny / Hopkins, Liza / Nedeljkovic, Maja et al. | 2024
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Health literacy interventions in adult speech and language therapy: A scoping reviewMcKenna, Verna B. / Gilheaney, Órla et al. | 2024
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Exploring the health‐related decision‐making experiences of people with chronic kidney disease and their caregivers: A qualitative studyGazaway, Shena / Gutierrez, Orlando / Wells, Rachel / Nix‐Parker, Tamara / Lyas, Claretha / Daniel, Shawona / Lang‐Lindsey, Katina / Bryant, Tara / Knight, Richard / Odom, James N. et al. | 2024
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Perceptions of transitional care services among patients with percutaneous transhepatic biliary drainage and multicentre health professionals: A qualitative studyYu, Huan / Wang, Xiaomei / Wang, Rui / Peng, Guoqing / Gong, Liyun et al. | 2024
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Working with public contributors in Parkinson's research: What were the changes, benefits and learnings? A critical reflection from the researcher and public contributor perspectiveLithander, Fiona E. / Tenison, Emma / Jones, David Ashford / Stocker, Sue / Hopewell‐Kelly, Noreen / Gibson, Andy / McGrath, Carmel et al. | 2024
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The lived experience of withdrawal from Selective Serotonin Reuptake Inhibitor (SSRI) antidepressants: A qualitative interview studyMahmood, Raqeeb / Wallace, Vuokko / Wiles, Nicola / Kessler, David / Button, Katherine S. / Fairchild, Graeme et al. | 2024
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Patient and public involvement in preclinical and medical research: Evaluation of an established programme in a Discovery‐Based Medical Research InstituteSmith, Robyn A. / Slocombe, Judith / Cockwill, Jo / Minas, Kathy / Kiossoglou, George / Gray, Katya / Lawrence, William / Iddles, Michelle / Scott, Clare / O'Reilly, Lorraine A. et al. | 2024
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A systematic review of theories, models and frameworks used for youth engagement in health researchSanchez, Sherald / Thorburn, Rachel / Rea, Marika / Kaufman, Pamela / Schwartz, Robert / Selby, Peter / Chaiton, Michael et al. | 2024
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Co‐design of the EMBED‐Care Framework as an intervention to enhance shared decision‐making for people affected by dementia and practitioners, comprising holistic assessment, linked with clinical decision support tools: A qualitative studyAworinde, Jesutofunmi / Evans, Catherine J. / Gillam, Juliet / Ramsenthaler, Christina / Davies, Nathan / Ellis‐Smith, Clare / EMBED‐Care Programme et al. | 2024
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Challenges and recommendations for advancing respite care for families of children and youth with special health care needs: A qualitative explorationWoodgate, Roberta L. / Isaak, Corinne A. / Kipling, Ardelle / Kirk, Sue et al. | 2024
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Participatory approaches for developing a practical handbook integrating health information for supporting individuals with mild cognitive impairment and their familiesKuroda, Yujiro / Goto, Aya / Sugimoto, Taiki / Fujita, Kosuke / Uchida, Kazuaki / Matsumoto, Nanae / Shimada, Hiroyuki / Ohtsuka, Rei / Yamada, Minoru / Fujiwara, Yoshinori et al. | 2024
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Experiences of people with long COVID: Symptoms, support strategies and the Long COVID Optimal Health Programme (LC‐OHP)Al‐Jabr, Hiyam / Thompson, David R. / Castle, David J. / Ski, Chantal F. et al. | 2024
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Patient perceptions of in‐hospital laboratory blood testing: A patient‐oriented and patient co‐designed qualitative studyPokharel, Surakshya / Khawaja, Zoha / Williams, Jonathan / Mithwani, Adnan Adil / Strain, Kimberly / Khanna, Prachi / Rychtera, Anna / Kiryanova, Veronika / Tang, Karen / Mathura, Pamela et al. | 2024
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Managing understandings of palliative care as more than care immediately before death: Evidence from observational analysis of consultationsSansone, Holly / Ekberg, Stuart / Lord, Sarah / Stevenson, James / Martinez, Katherine / Yates, Patsy et al. | 2024
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Understanding the evolution of trust in a participatory health research partnership: A qualitative studyGilfoyle, Meghan / MacFarlane, Anne / Hughes, Zoe / Salsberg, Jon et al. | 2024
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Participatory research with carers: A systematic review and narrative synthesisBowness, Bryher / Henderson, Claire / Akhter Khan, Samia C. / Akiba, Mia / Lawrence, Vanessa et al. | 2024
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Issue Information| 2024
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Which factors drive the choice of the French‐speaking Quebec population towards a COVID‐19 vaccination programme: A discrete‐choice experimentMorillon, Gabin F. / Poder, Thomas G. et al. | 2024
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‘We need more support and doctors that understand the process of tapering …’: A content analysis of free‐text responses to a questionnaire on discontinuing long‐term benzodiazepine receptor agonist useLynch, Tom / Ryan, Cristín / Huff, Christy / Foster, D. E. / Cadogan, Cathal et al. | 2024
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An umbrella review of reviews on challenges to meaningful adolescent involvement in health researchWarraitch, Azza / Lee, Maria / Bruce, Delali / Curran, Paul / Khraisha, Qusai / Wacker, Ciara / Hernon, Joshua / Hadfield, Kristin et al. | 2024
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The League: A person‐centred approach to the development of social robotics for paediatric anxietyDosso, Jill A. PhD / Kailley, Jaya N. BSc / Robillard, Julie M. et al. | 2024
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(Re)constructing identity following acquired brain injury: The complex journey of recovery after strokeFaccio, Elena / Fonte, Cristina / Smania, Nicola / Neri, Jessica et al. | 2024
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The HUSH Project: Using codesign to reduce sleep disruptions for patients in hospitalAdams, Corey / Walpola, Ramesh / Schembri, Anthony / Harrison, Reema et al. | 2024
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Parents' experiences of parenting a child with profound intellectual and multiple disabilities in France: A qualitative studyAim, Marie‐Anastasie / Rousseau, Marie‐Christine / Hamouda, Ilyes / Anzola, Any Beltran / de Villemeur, Thierry Billette / Milh, Mathieu / Maincent, Kim / Lind, Katia / Auquier, Pascal / Baumstarck, Karine et al. | 2024
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Accessing Meals on Wheels: A qualitative study exploring the experiences of service users and people who refer them to the servicePapadaki, Angeliki / Wakeham, Mary / Ali, Becky / Armstrong, Miranda Elaine Glynis / Willis, Paul / Cameron, Ailsa et al. | 2024
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Experiences and perceptions of continuous deep sedation: An interview study among Dutch patients and relativesJonker, Louise Annemoon / Heijltjes, Madelon T. / Rietjens, Judith A. C. / van der Heide, Agnes / Hendriksen, Geeske / van Delden, Johannes J. M. / van Thiel, Ghislaine J. M. W. et al. | 2024
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Sense of psychological ownership in co‐design processes: A case studyJuel, Anette / Berring, Lene L. / Erlangsen, Annette / Larsen, Erik R. / Buus, Niels et al. | 2024
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Exploring the barriers and facilitators to volunteering as an intervention for those with long‐term neurological conditions: How make therapeutic volunteering possible?Eisenhut, Helene / Collett, Johnny / Yazdani, Farzaneh et al. | 2024
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‘It opened my eyes, my ears, and my heart’: Codesigning a substance use disorder treatment programmeBosak, Julie / Drainoni, Mari‐Lynn / Bryer, Cheri / Goodman, Daisy / Messersmith, Lisa / Declercq, Eugene et al. | 2024
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How do Twitter users feel about telehealth? A mixed‐methods analysis of experiences, perceptions and expectationsSazon, Hannah / Catapan, Soraia de Camargo / Rahimi, Afshin / Canfell, Oliver J. / Kelly, Jaimon et al. | 2024
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Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end‐of‐lifeVellani, Shirin / Yous, Marie‐Lee / Rivas, Vanessa Maradiaga / Lucchese, Stephanie / Kruizinga, Julia / Sussman, Tamara / Abelson, Julia / Akhtar‐Danesh, Noori / Bravo, Gina / Brazil, Kevin et al. | 2024
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Health and social care experience and research perception of different ethnic minority populations in the East Midlands, United Kingdom (REPRESENT study)Ekezie, Winifred / Cassambai, Shabana / Czyznikowska, Barbara / Curtis, Ffion / O'Mahoney, Lauren L. / Willis, Andrew / Chudasama, Yogini / Khunti, Kamlesh / Farooqi, Azhar et al. | 2024
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Uncovering communication strategies used in language‐discordant consultations with people who are migrants: Qualitative interviews with healthcare providersChan, Brittany M. C. / Suurmond, Jeanine / van Weert, Julia C. M. / Schouten, Barbara C. et al. | 2024
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Does outcome expectancy predict outcomes in online depression prevention? Secondary analysis of randomised‐controlled trialsThielecke, Janika / Kuper, Paula / Ebert, David / Cuijpers, Pim / Smit, Filip / Riper, Heleen / Lehr, Dirk / Buntrock, Claudia et al. | 2024
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How to mobilise users' experiential knowledge in the evaluation of advanced technologies and practices in Quebec? The example of the permanent users' and relatives' panelPomey, Marie‐Pascale / Pelaez, Sandra / Le Roux, Enora / Demers‐Payette, Oliver / Sirois, Marie‐Claude / Lochhead, Louis / Ganache, Isabelle / Normandin, Louise / L'Espérance, Audrey / de Guise, Michèle et al. | 2024
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Uptake of a self‐guided digital treatment for depression and anxiety: A qualitative study exploring patient perspectives and decision‐makingFisher, Alana / Eugene Dit Rochesson, Sylvia / Bisby, Madelyne A. / Scott, Amelia J. / Gandy, Milena / Heriseanu, Andreea / Titov, Nick / Dear, Blake et al. | 2024