Assessing patients' and caregivers' perspectives on stability of factor VIII products for haemophilia A: a web‐based study in the United States and Canada (English)
- New search for: DiBenedetti, D. B.
- New search for: Coles, T. M.
- New search for: Sharma, T.
- New search for: Pericleous, L.
- New search for: Kulkarni, R.
- New search for: DiBenedetti, D. B.
- New search for: Coles, T. M.
- New search for: Sharma, T.
- New search for: Pericleous, L.
- New search for: Kulkarni, R.
In:
Haemophilia
;
20
, 4
;
e296-e303
;
2014
- Article (Journal) / Electronic Resource
-
Title:Assessing patients' and caregivers' perspectives on stability of factor VIII products for haemophilia A: a web‐based study in the United States and Canada
-
Contributors:DiBenedetti, D. B. ( author ) / Coles, T. M. ( author ) / Sharma, T. ( author ) / Pericleous, L. ( author ) / Kulkarni, R. ( author )
-
Published in:Haemophilia ; 20, 4 ; e296-e303
-
Publisher:
-
Publication date:2014-07-01
-
Size:8 pages
-
ISSN:
-
DOI:
-
Type of media:Article (Journal)
-
Type of material:Electronic Resource
-
Language:English
-
Keywords:
-
Source:
Table of contents – Volume 20, Issue 4
The tables of contents are generated automatically and are based on the data records of the individual contributions available in the index of the TIB portal. The display of the Tables of Contents may therefore be incomplete.
- 455
-
Does the orphan medicinal product regulation assist or hinder access to innovative haemophilia treatment in Europe ?O'Mahony, B. / Peyvandi, F. / Bok, A. et al. | 2014
- 459
-
The burden of bleeding in haemophilia: is one bleed too many?Gringeri, A. / Ewenstein, B. / Reininger, A. et al. | 2014
- 464
-
Use of recombinant activated factor VII in patients with Glanzmann's thrombasthenia: a review of the literatureRajpurkar, M. / Chitlur, M. / Recht, M. / Cooper, D. L. et al. | 2014
- 472
-
Cardiovascular comorbidities are increased in US patients with haemophilia A: a retrospective database analysisPocoski, J. / Ma, A. / Kessler, C. M. / Boklage, S. / Humphries, T. J. et al. | 2014
- 479
-
Physical and mental quality of life in adult patients with haemophilia in Belgium: the impact of financial issuesCarvalhosa, A. M. / Henrard, S. / Lambert, C. / Hermans, C. et al. | 2014
- 486
-
Predictive immunogenicity of Refacto® AFDelignat, S. / Repessé, Y. / Gilardin, L. / Dimitrov, J. D. / Lone, Y.C. / Kaveri, S. V. / Lacroix‐Desmazes, S. et al. | 2014
- 493
-
A longitudinal study of family structure in Swedish persons with haemophiliaLövdahl, S. / Henriksson, K. M. / Baghaei, F. / Holmström, M. / Berntorp, E. / Astermark, J. et al. | 2014
- 500
-
The demographics of the United States haemophilia treatment centre social workers: the results of a national surveyGeary, M. K. / McGeady, L. / Dunn, L. / Pennick, L. / Johnson, M. / Stolfi, A. et al. | 2014
- 506
-
Better adherence to prescribed treatment regimen is related to less chronic pain among adolescents and young adults with moderate or severe haemophiliaMcLaughlin, J. M. / Witkop, M. L. / Lambing, A. / Anderson, T. L. / Munn, J. / Tortella, B. et al. | 2014
- 513
-
Coping in adult patients with severe haemophiliaBinnema, M. / Schrijvers, L. H. / Bos, R. / Schuurmans, M. J. / Fischer, K. et al. | 2014
- 519
-
A haemophilia disease management programme targeting cost and utilization of specialty pharmaceuticalsDuncan, N. / Roberson, C. / Lail, A. / Donfield, S. / Shapiro, A. et al. | 2014
- 527
-
Assessment of the impact of treatment on quality of life of patients with haemophilia A at different ages: insights from two clinical trials on turoctocog alfaSantagostino, E. / Lentz, S. R. / Busk, A. K. / Regnault, A. / Iorio, A. et al. | 2014
- 535
-
Trends in the epidemiology, diagnosed age and mortality rate of haemophiliacs in Taiwan: a population‐based study, 1997–2009Chang, C.‐Y. / Yeh, G.‐C. / Lin, S.‐Y. / Tseng, I.‐J. / Tsai, C.‐H. / Lee, Y.‐W. et al. | 2014
- 541
-
Understanding the experience of caring for children with haemophilia: cross‐sectional study of caregivers in the United StatesDeKoven, M. / Karkare, S. / Kelley, L. A. / Cooper, D. L. / Pham, H. / Powers, J. / Lee, W. C. / Wisniewski, T. et al. | 2014
- 550
-
Diagnosis and management challenges in patients with mild haemophilia A and discrepant FVIII measurementsTrossaert, M. / Lienhart, A. / Nougier, C. / Fretigny, M. / Sigaud, M. / Meunier, S. / Fouassier, M. / Ternisien, C. / Negrier, C. / Dargaud, Y. et al. | 2014
- 559
-
Diagnosis of inherited von Willebrand disease: comparison of two methodologies and analysis of the discrepanciesCosta‐Pinto, J. / Pérez‐Rodríguez, A. / Goméz‐del‐Castillo, M. del C. / Lourés, E. / Rodríguez‐Trillo, Á. / Batlle, J. / López‐Fernández, M. F. et al. | 2014
- 568
-
Congenital factor XIII deficiency in Pakistan: characterization of seven families and identification of four novel mutationsBorhany, M. / Handrkova, H. / Cairo, A. / Schroeder, V. / Fatima, N. / Naz, A. / Amanat, S. / Shamsi, T. / Peyvandi, F. / Kohler, H. P. et al. | 2014
- 575
-
Rare coagulation factor deficiencies: a countrywide screening data from IndiaShetty, S. / Shelar, T. / Mirgal, D. / Nawadkar, V. / Pinto, P. / Shabhag, S. / Mukaddam, A. / Kulkarni, B. / Ghosh, K. et al. | 2014
- 582
-
Is joint effusion on MRI specific for haemophilia?Foppen, W. / van der Schaaf, I. C. / Witkamp, T. D. / Fischer, K. et al. | 2014
- 587
-
Major surgery in severe haemophilia A with inhibitors using a recombinant factor VIIa and activated prothrombin complex concentrate hybrid regimenvan Veen, J. J. / Maclean, R. M. / Hampton, K. K. / Hamer, A. / Makris, M. et al. | 2014
- 593
-
Evaluation of the activated partial thromboplastin time assay for clinical monitoring of PEGylated recombinant factor VIII (BAY 94‐9027) for haemophilia AGu, J‐M. / Ramsey, P. / Evans, V. / Tang, L. / Apeler, H. / Leong, L. / Murphy, J. E. / Laux, V. / Myles, T. et al. | 2014
- e243
-
Therapeutic management and costs of severe haemophilia A patients with inhibitors in ItalyAbbonizio, F. / Giampaolo, A. / Coppola, A. / Arcieri, R. / Hassan, H. J. / the Italian Association of Haemophilia Centres (AICE) et al. | 2014
- e251
-
First analysis of 10‐year trends in national factor concentrates usage in haemophilia: data from CHARMS, the Canadian Hemophilia Assessment and Resource Management SystemTraore, A. N. / Chan, A. K. C. / Webert, K. E. / Heddle, N. / Ritchie, B. / St‐Louis, J. / Teitel, J. / Lillicrap, D. / Iorio, A. / Walker, I. et al. | 2014
- e260
-
Impact of health instructions on improving knowledge and practices of haemophilia A adolescents: a single centre experienceEl Dakhakhny, A. M. / Hesham, M. A. / Hassan, T. H. / El Awady, S. / Hanfy, M. M. et al. | 2014
- e267
-
Reliability and validity of a novel Haemophilia‐specific Self‐Efficacy ScaleLock, J. / Raat, H. / Peters, M. / Tamminga, R. Y. J. / Leebeek, F. W. G. / Moll, H. A. / Cnossen, M. H. et al. | 2014
- e275
-
When is enough … enough? Developing consensus of definition of failure of immune tolerance induction in patients with haemophilia and inhibitorsBarnes, C. / Brown, S. A. / Curtin, J. / Dunkley, S. et al. | 2014
- e280
-
Prospective observational cohort studies for studying rare diseases: the European PedNet Haemophilia RegistryFischer, K. / Ljung, R. / Platokouki, H. / Liesner, R. / Claeyssens, S. / Smink, E. / van den Berg, H. M. et al. | 2014
- e287
-
Haemophilia Experiences, Results and Opportunities (HERO) Study: Influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophiliaCassis, F. R. M. Y. / Buzzi, A. / Forsyth, A. / Gregory, M. / Nugent, D. / Garrido, C. / Pilgaard, T. / Cooper, D. L. / Iorio, A. et al. | 2014
- e296
-
Assessing patients' and caregivers' perspectives on stability of factor VIII products for haemophilia A: a web‐based study in the United States and CanadaDiBenedetti, D. B. / Coles, T. M. / Sharma, T. / Pericleous, L. / Kulkarni, R. et al. | 2014
- e304
-
Evaluation of a rapid von Willebrand Factor Activity Latex Immuno Assay for monitoring of patients with von Willebrand disease (VWD) receiving DDAVP® or VWF replacement therapyVinayagam, S. / Simons, L. R. / Chowdary, P. / Thurlow, P. / Brooks, S. V. / Riddell, A. F. et al. | 2014
- e311
-
Germline de novo mutations and linkage markers vs. DNA sequencing for carrier detection in von Willebrand diseaseAhmad, F. / Oyen, F. / Jan, R. / Budde, U. / Schneppenheim, R. / Saxena, R. et al. | 2014
- e318
-
Asp68His mutation in the A1 domain of human factor V causes impaired secretion and ineffective translocationLiu, H.‐C. / Shen, M.‐C. / Eng, H.‐L. / Wang, C.‐H. / Lin, T.‐M. et al. | 2014
- e327
-
Validation of the manufacturing process used to produce long‐acting recombinant factor IX Fc fusion proteinMcCue, J. / Osborne, D. / Dumont, J. / Peters, R. / Mei, B. / Pierce, G. F. / Kobayashi, K. / Euwart, D. et al. | 2014
- e336
-
Percutaneous transluminal angioplasty and stent implantation for aortic coarctation in haemophilia A patient with high‐titre factor VIII inhibitorsGiuffrida, G. / Lombardo, R. / Parrinello, N. L. / Cingari, M. R. / Di Francesco, E. / Triolo, A. M. / Ussia, G. P. / Arcidiacono, A. A. / Scandura, S. / Di Raimondo, F. et al. | 2014
- e338
-
Oral health status among 6‐ to 12‐year‐old haemophilic children–An educational intervention studyGaddam, K. R. / Nuvvula, S. / Nirmala, S. / Kamatham, R. et al. | 2014
- e341
-
Discrepancy in von Willebrand factor activity determined by ristocetin cofactor and immunotubidometric assaysReilly‐Stitt, C. / Coppell, J. / Mumford, A. D. et al. | 2014
- e344
-
Use of factor VIII after inhibitor clearance in patients with moderate haemophilia A: a case seriesTran, D. Q. / Harvey, R. D. / Meeks, S. L. / Chapman, R. / Kempton, C. L. et al. | 2014
- e347
-
A Haut‐Doubs FVII variant depending on species‐derived‐thromboplastin reagent (F7:p.Arg337His)Mourey, G. / Tachon, G. / Pellequer, J.‐L. / Zawadzki, C. / Trossaërt, M. / Bertrand, M.‐A. / Schved, J.‐F. / Giansily‐Blaizot, M. et al. | 2014
- e349
-
FXI concentrate use and risk of thrombosisBolton‐Maggs, P. / Goudemand, J. / Hermans, C. / Makris, M. / de Moerloose, P. et al. | 2014
- e351
-
Statistical modelling issues in the RODIN studyMoorehead, P. C. et al. | 2014
- e352
-
Traumatic hyphaema in a patient with severe haemophilia BDanaee, A. / Patil, J. / Amaya, L. / Alamelu, J. et al. | 2014
- e354
-
Acquired thrombin and FV inhibitors upon aortic bioprosthetic valve replacementHervent, A.‐S. / Schepens, M. / Bourgeois, M. / Emmerechts, J. et al. | 2014
- e356
-
Life expectancy of Korean haemophiliacs, 1991–2012Yoo, K. Y. / Kim, S. K. / Kwon, S.‐S. / Park, S. K. / Yoon, H. J. / Lee, K. S. / Hwang, T. J. / Choi, Y. M. / Lee, S. Y. et al. | 2014